Data-driven illness
CancerX Data Sprint
Today, the data from a single patient’s tumor in a clinical trial can add up to one terabyte — the equivalent of 130,000 books. Additionally, over 13 million electronic medical records exist for cancer patients in the U.S. alone.
Cancer is a data-driven illness and merging data assets across different sectors is an essential step to fighting this terrible disease. CancerX Data Sprint aims to do just that: collaborate with the federal government and industry to build comprehensive real-world datasets in a way that’s never been done before in oncology.
Our 3-Step Approach
COMPLETE
Identify the high-value research questions that could be asked about the standardized real-world data (RWD) and real-world evidence (RWE) generated through EOM.
COMPLETE
Supplement existing data collection elements to optimize the RWD/RWE to support scientific inquiries, referencing the existing work of Minimal Common Oncology Data Elements (mCODE) and FDA Oncology Center of Excellence (OCE).
ACTIVE
Support piloting the implementation of these data elements in coordination with ONC, NCI, and CMMI, along with health IT vendors, health systems, payors, life science companies, and data research platforms.
Approach Summary
The CancerX community sprinted into action to support the collective efforts of the Center for Medicare and Medicaid Innovation (CMMI), the National Cancer Institute (NCI), the US Food and Drug Administration (FDA), the Office of the National Coordinator for Health Information Technology (ONC) to advance cancer-related data standards.
Specifically, we are providing additional support and insights into the ongoing collaboration between the CMMI’s Enhancing Oncology Model (EOM) and the development of ONC’s United States Core Data for Interoperability (USCDI+) – Oncology extension, which aims to support the establishment of domain-specific data element lists as extensions to the existing USCDI.
Data Sprint Extension
CancerX is working closely with partners, members, and healthcare technology companies to adopt key cancer-related data elements to improve the usability and accessibility of cancer data to benefit patient care everywhere.
This effort will bring us one step closer to capturing and sharing the data necessary to give clinical researchers, doctors, and patients the right medical information they need at the right time to create scientific breakthroughs, effectively coordinate and deliver care, and improve the overall patient experience and outcomes.
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The CancerX Constellation is a online virtual community that provides oncology experts and healthcare leaders a private, exclusive environment to network, collaborate, engage in meaningful discussion and take part in CancerX Initiatives. You can create your own Follower profile for free to review and download all CancerX reports and findings.
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